I’m really concerned because in Dec. 2001 I got so sick with the flu. I went to (name change) Denise’s Eastern MD (Korean Medicine). He looked at my geographic tongue (unusual pattern) and said, “You don’t just have a simple cold or Flu! You have an INFECTIOUS DISEASE.” I didn’t believe him and I freaked out so he called (my mom) Valerie, with my permission, and told her. He said, “Your daughter has an Infectious Disease.” He further explained what to her but she didn’t tell me what he said. Valerie said, “Just ignore him. He must be a quack!” Denise trusted him with her life and took the Eastern pellet medicines he gave her for fibromyalgia. I was friggin out. E and I went to Quest Diagnostics near 5th Ave. N or 9th Ave. N. I got tested for the only Infectious Disease I knew, HIV/ AIDS. That was, of course, negative. That Eastern MD had told me to take pellets and watch my stools. I was like, “Whaaaat?” I did for the one jar of pellets I bought and quit. It made me more regular but I didn’t return to him bc it freaked me and I didn’t have excess money.
Well guess what?! I have an Infectious Disease, as stated in my labs from Diagnostechs and Genova Diagnostics. It’s affecting me neurologically from permeating my intestinal walls— the night I woke up screaming in pain about my tummy while I wore the dumb Klinghardt machine. That machine placed right where the infection existed sent currents (frequencies via batteries) that made the infect move the heck out of my small intestine. Hence, why I can gain weight now. And, why I have no gait now. And why I repeat myself and forget very simple things….easily confused. Remicade and 3 yrs corticosteroids and chemotherapy (6 Mercaptopurine) are NOT to be taken with infection.
Did PHR hospital really miss the opportunity to diagnose this? Yes, because they are not taught about this happening in medical school. If PHR hospital said that my mouth was fine from their x-ray, WHY did I have 16 cavities?!!!!!
FWIW it’s contagious in spit, vomit, bodily fluids.
I am existing, not living. I cannot do anything because I have chronic spins feeling. If my head is off the bed, it cannot be for any extreme length of time. Life is short. I wouldn’t have known I’d be ill when I gave birth ten years ago. I was sick then but it was controllable, or so I thought. If you let an infection go (strep throat) for years, put it on immunosuppressants and chemo, that strep throat is going to become systemic. Bad deal. If no research is done on the problem what happens? It doesn’t improve.
I smile though I feel bad because I don’t want to burden others. I vent in my blog because that’s the entire point in my having this blog. I also use this as a platform to help, support and inform others who find themself in a similar situation.
Sincerely wishing you a Happy New Year! Listen to your instincts. Mine were right. I knew I didn’t have an inflammatory bowel disease because everything I was clinically “tried on” made me much worse sick. One day, I called my doctor, who was aware that I had a severe fungal infection from 35 weeks on antibiotics. I had begun Remicade. I felt so horrific. I recall laying down on my driveway while on the telephone with the doctor. I layed there, too weak to grocery shop, too weak to stand upright. Nobody can judge me because nobody knows what I’ve endured. Nobody else could begin to imagine being a guinea pig, a guinea pig who can no longer “play” despite “existing”. Activities I yearn for include: PTA Mom, field trip Mom, chauffeur my kids everywhere, help them with homework, paddle board, hike, camp, kayak. If only I could keep my head upright like the majority of the population can do without thought.
I love my kids and I will smile. I will smile for them because they are my world. It doesn’t mean that it’s ok. I believe God has me in His hands. I can’t understand “why this?”, “why me?”, “why infectious?” at only 39 years old.
Last night, I briefly visited my 97 year old lovely suite mate, Elanore, in her room. My wheelchair was put to use regardless of my dizziness.
I held Elanore’s hand as she lay in bed. She said, “After 25 women, coming and going in her eight years here, as former suite mates, God intentionally put me in her life and her in my life.” In only one month of sharing a suite, we’ve built a loving grandmother and granddaughter relationship. We can’t do much but we do look out for one another. For instance, when Elanore was pressing her pendant for help and nobody arrived promptly, I slid into my locked wheelchair and helped her get both legs out of her one pant leg.
For me, she imparts words of wisdom. They don’t make ‘em like they did in 1920 anymore. She survived the depression era. All of her children and grandsons are doctors, at the Cleveland Clinic (not in Largo, FL). They graduated from Emory Medical school. We toured that campus for prospective undergraduate schools.
Elanore’s son-in-law, a retired pharmacist, understands my medical problem 110% because he knows the chemicals in the black label biologics, corticosteroids and chemotherapy. All of which I was prescribed without a firm diagnosis. He asked, “how do you still have a radiant smile after all of this?” It’s The Holy Spirit that fills me with peace. When people say, “Peace beyond understanding.” That. That’s what I feel many days, not every single day, but most of them. My retired pharmacist acquaintance wants to contact the CDC and attempt to reach the top parasitologists in America. I warned him of the difficulty and because “we think: not in America!” I’m unsure he can contribute, however, because he’s busy caring for his beautiful wife as she battles cancer. They travel to Atlanta, GA, for her treatments every three weeks. Elanore and I shared our concerns with one another and struggles adjusting to enormous life changes. Being that she’s half Catholic and half Jewish, I prayed the Rosary before leaving her room. She chimed in at parts she recalled. It was special to be at this place, at this time in life.
Wishing you peace unlike anything you’ve ever experienced! Cheers to you in 2018!